Saturday, November 29, 2008
Funny Sayings
Levi, "I gonna drive the blue car." Me, "where are you going to drive to?" Levi, "to Grandpa's house. Caleb sit in the back seat. Pooh Bear coming too."
Levi, "Mom! We're baking (raking) the leaves!"
Levi, after getting a tissue, "I blowing up my nose."
Caleb, after I said I had a head ache, "Mom, you got a hair ache?"
Caleb, "Mom, you making a milkshaker?"
Caleb, "Daddy's moving (mowing) the lawn."
Caleb, after taking Ian to the bus stop, "no neighbors to talk."
And Ian, until just a few weeks ago, has needed to look at the "destructions" (instructions) to see how things are supposed to go :)
Tuesday, November 4, 2008
Hospitals and Halloween
Friday morning the Child Life Specialists took all the children who were able trick-or-treating around to the nurses stations on each floor of the hospital. Levi actually had just taken his medication and was kind of out of it, we didn't make it to all the floors, but he held in to the things he was given - especially these two little boxes he fell asleep with later on - and it was nice to get out of his room for a little while.
Friday afternoon Levi was feeling pretty good. We went to the playroom and then brought some toys back. He was playing with this toy that plays music and after a while he laid down and played with it, and in a few more minutes the music stopped and he was sound asleep, his hands still on it.
Since we knew Levi would be sick on Halloween, and grandparents wouldn't be home that night, we went trick-or-treating to their house on Monday. That way I could still make Caleb and Levi the costumes I wanted (I didn't think it would be nearly as much fun to have a Thing 1 without his Thing 2). Plus I got to make Caleb another one for Friday. Ian was excited to be a train engineer, that's what he wants to be when he grows up. On Friday Ian and Caleb had a great time trick-or-treating and both kept wanting to go to more and more houses.
Thing 1, aka Caleb, Ian the train engineer, and Thing 2, Levi.
Ian the train engineer, Caleb the doctor, and Levi the patient. He got this bear at the hospital and has fallen asleep many times since then with it in his arms.
The excitement of trick-or-treating and Levi coming home was somewhat subdued this year, with the still-birth of our sweet little baby niece on Halloween morning. It was really a shock to everyone, and we're saddened greatly by it. It's so nice to know there is a plan for each of us, that sometimes sad things are part of that plan, and that we can have faith it will all work out for our good in the end.
Wednesday, October 29, 2008
October 2008

I got a mirror to hang up where they could see in it easily, because Caleb and Levi don't know who they are - when Levi looks in the mirror, he says it's Caleb. When Caleb looks in the mirror, he says it's Levi. It makes sense, really! Even one day Caleb was wearing his hat that he knows is his and watched me in the mirror put it on and off his head and he still said it's Levi! But now that they can see themselves more often, they are figuring it out. Before, they only saw their brother, or himself alone in a mirror, hardly ever did they see the two of them together. Maybe now they're realizing there are two of them.

Ian went on a field trip to the pumpkin patch with his class, and had a great time! I went along, not that he even cared I was there. He's really so very different than he was a few months ago! School has really changed him. He was just going with all the kids and so happy to be there. They went through a little corn maze, picked pumpkins, and went through a straw bale maze. And, the biggest thing, he got on the bus! He hesitated at the door, but then got right on and sat in the front with two friends. I sat in the back, and couldn't even see him the whole time, but he did great! And so.....


They love the new desk! And no, I didn't put Caleb in the drawer - he got in himself! But couldn't get out :)


Their favorite activity - riding (or climbing, or wrestling) Daddy!


I wonder if they're identical? I took these pictures just seconds apart of how they were sleeping. Often Levi sleeps on his back and Caleb on his tummy, but there are times when they are in the exact same position - and often with their heads back like that; doesn't look too comfortable to me, but they seem to like it!
Tuesday, October 14, 2008
Levi
I think he looks like a spaceman in this one! He's wearing the hood to Ian's coat.

Levi loves to play with Caleb and Ian, he loves to be silly with them, but he also likes to just play by himself, like with the cars and trains.

Exactly 2 years from the day Levi was discharged from the NICU he returned to the hospital to do a swallow study - they sat him in this chair and brought the x-ray machine to the left side of his head, and gave him pudding and milk that had barium in it, and did a video x-ray (it has more technical terms, of course) to see on the screen how he swallowed (that's not his profile on the screen, that was the last person's). And from that, it was determined that he needs his tonsils out! John thinks I'm a little crazy to be happy about this, but I am! The little guy can't eat. He can only eat pureed food. He's interested in trying new foods, and will suck on or even bite pieces off foods....but he spits them right back out. He'll even bite through a whole apple slice and spit out each bite, and then ask for more. But he can't chew and can't get any solid food down without gagging. So, I think that getting rid of his tonsils will be a huge help, and that then the therapy he's getting (plus more he'll get afterward) will be able to help him learn to eat. The recovery might not be so fun, though!

I laughed when I went in to find Levi one day, he had got down the wipes because Eeyore needed his diaper changed :) He's really observant, and things need to be done the right way, things need to be in their right places (except the toys that are all over the house, of course :) ), drawers and cupboards need to be shut, even if I'm trying to use something in them.....

This is Levi when his therapist was here - he was playing in cornmeal. As you can tell from the video below, he doesn't like things on him; but he actually did pretty well with this cornmeal - he had it all over him! He was so distracted by this blue-haired guy, I suppose, that he forgot to mind the cornmeal touching him.
So here's a video of Levi - part of his therapy is sensory-oriented. Some kids have problems with things touching them, all over their bodies, making it hard for them to want to have different textures and foods in their mouths. So, part of what she does is use things such as suckers, that stimulate his mouth, but also she does sensory activities, like playing in the cornmeal from the picture above. She also brings beans and I also have some for him to play in; with Caleb around it's easy to tell the differences between them. Caleb will get in and get covered, Levi tries not to touch it, as you can see. Next there's him singing while playing the piano, and finally my favorite - he always asks, "What are you doing, Mommy?" and I answer with what I'm doing and ask him what he's doing - and I love his answer - "oh, pretty good".
Thursday, October 9, 2008
End of September

Ian still hasn't ridden the bus to school, but we've walked a few times. It takes about 20 minutes, which is a pretty good walk for a little boy. But he's wanted to do it several times.

Levi (in hat) and Caleb enjoying a little dinner and phone conversation (with the TV remote) at Grandpa's house.
Ian's train - seconds before it rolled off it's round block wheels.
And a video - the first part is Caleb (on right) singing "Are You Sleeping" and Levi joins - kind of like a round, kind of :) The tattoo-looking things on their arms, by the way, are stamps they get from gymnastics. The second part of the video is Ian drumming - I have no idea where he ever saw anyone drumming, but he's pretty good! The last part is Caleb leading Levi in "Ring Around the Rosies" - in a very roundabout way :) I said I'd never have kids running around in diapers, but I suppose this is proof that that isn't true.